Now in my late 30’s I’m in pain. Like a lot of pain. I’m tired. Everything hurts. So my doctor ordered a bunch of tests. I had heightened levels of inflammation but not lupus or rheumatoid arthritis. No celiacs disease. My doc was kind of stumped. She said I could have something else or one of the rarer things that didn’t show up in tests.
Then A broke her leg. Walking on a flat surface. She didn’t fall it just popped. The doc at urgent care who diagnosed her was kind of freaking out that she just broke. She mentioned all sorts of random things. Osteo imperfecta. Ehlers danlos syndrome etc. she made me promise to follow up with the ped or ortho or whoever and find out why. The ortho wasn’t concerned. He mentioned that he sees random stuff like this after a growth spurt sometimes. The end of the bone is brittle and pops. But then I was talking to one of her doctors about something allergy related and Ehlers Danlos came up again.
So I consulted DR Google. (Hey. Kiddos doc has approved my dr googling. He said there are great resources just be careful and don’t make huge changes based on dr google without consulting first. Ha. ) anyway as I was reading about EDS a lightbulb went off in my head. Besides two different doctors mentioning it, it fit me (and half my family) to a tee. Like a lot.