Monday, October 22, 2018

We’ve come so far...

We’ve come so far and learned so much. And seen so many medical professionals.
We’re still not sure what’s going on with Kiddo. She’s been diagnosed with orthostatic hypotension. (Low BP. )And it’s worse when she stands. Her pulse shoots up. She may have something called POTs. Positional orthostatic tachycardia syndrome. When she stands up her pulse goes super high. Little kiddo and i were both diagnosed with a rare genetic condition. It explains so much. Big A sees the geneticist tomorrow. We’ll find out if she has it too. I expect she does. Sorry kids. Apparently my genes suck.

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